Hey folks, so because few people seem to understand how hard aging with CP can be, I have decided to write a book about it. This book will primarily be for doctors, physical therapists, and parents to understand what it's like to age with cerebral palsy. I want each chapter to have a different person talking about their body and how it changed. Obviously I don't expect people to have medical knowledge, but I do expect you to be able to articulate your experience. This is just in the begining stages, but if the book gets published, you will certainly be compensated if I;include your article. Let me know if you're interested or have any questions.Thank you.
Eva, good luck! This sounds like a very noble endeavor. And a very self-effacing one to learn from. I think it will benefit many. I do not have CP, but had a polio as a child, and am now 56. Aging with a disability seems a compelling subject, and I immediately emphathize with your perspective. If I find contacts that could contribute, I will connect them with you. I will be interested to follow your progress.